Hello and Happy Friday!
Just wanted to give you a quick update here before the weekend...
We went and met with Patti Lewis at Alexandra's House on Wednesday night. She was warm and very supportive of the decision that we have made to continue our pregnancy. She asked lots of questions, provided gentle counsel, and suggested some things that we might want to think about prior to our delivery date....it was a good discussion and not as much of a downer as I had thought it might be....mostly because many of you were praying for us, I am sure. So thank you.
As a part of our visit, we got to see many pictures of the babies and families that have been through Alexandra's House, and it was incredible. Even though these babies weren't "normal" by society's standards, they were each absolutely beautiful. God's hand in creating them was so evident as you looked at their peaceful faces, some living, some having moved beyond this world. In many of the pictures, the babies were cradled in their parents' hands or arms...and in most photos, the parents were smiling, which is incredible to me....further evidence of the grace and strength God will provide us in that moment. Patti also encouraged us to let Connor and Kylee come to the hospital to meet their baby brother...she says that children don't see what the world sees...and that we should allow them the opportunity to be a big brother and big sister, because that is, after all, what they are. We're still pondering this one, but I know that the thought of our three children in the room all together is one that evokes great emotion in me...and if it's a vision that I won't get to have for long, maybe I should snag it while I can...
We do plan on having pictures of our son taken by a photographer from Now I Lay Me Down to Sleep...they have a website if you want to see some of their work. These photographers volunteer their service for families like ours...www.nowilaymedowntosleep.org...get out your kleenex and have a look at these precious babies.
Jan did a sonogram for us this afternoon, and once again, our little man was kicking, poking, and prodding throughout the whole session. We did a get a good picture of his face, which is so precious to us. Jan scanned us for almost an hour, and it was such a gift (as it always is) to see his heartbeat on the screen. She tells us that she doesn't know what she is doing...but let me tell you what precious moments she provides us with, regardless of her feelings about her competence....knowing that we may not get to know our baby for long outside of the womb makes these moments even more sacred to us...we are so thankful for her time, and for the Women's Center that allows us into their space....
Next week will be a relatively quiet week. We found out that our insurance will not cover the cost of an autopsy after the baby is born, so in an effort to find out if the baby's kidney function is the cause of the lack of fluid, I am going to have a MRI done on Tuesday morning in the hopes that maybe it will provide us an answer about the root of the problem. I am scared that this procedure will only bring more bad news...but at the same time, how much worse can it be, and we feel that gaining as much knowledge as we can is important....I am guessing we will have to wait a few days for results following the scan, but we will certainly let you know what we find out.
I have remained in decent spirits this week. We will celebrate Brandon's 31st birthday this weekend, which we are all really excited about. Mother's Day will be tough this year...both because my own mother isn't here, and because my littlest one isn't healthy....but I am so grateful to celebrate this holiday with Brandon, Connor, and Kylee...God's greatest gifts to me.
Speaking of, Connor and Kylee are doing very well, and I want to post some pictures of them this weekend. Kylee got a new haircut this week that makes her look about a year older. Connor's school took a field trip out to the Shatto Dairy Farm a couple weeks ago, and I have some fun photos of that as well.
And the band plays on....
Happy Mother's Day to all you Mommies out there! :)
Friday, May 09, 2008
Tuesday, May 06, 2008
It All Began When...
I had mentioned in my last post that I might share a little bit of our son's history with you, especially with those of you who are checking and may not know how this all got started. :) It has been amazing to hear from all of you through comments on the blog and e-mail...it humbles us to know that so many people are praying!
I found out I was pregnant on December 10th. The first trimester of my pregnancy was appropriately miserable...I was tired, a little nauseous, and had many of the typical woes of early pregnancy. We visualized our son's heartbeat on sonogram on January 16th and it was a beautiful moment. I was overwhelmed by God's goodness, granting us three children...I know that so many women have to face multiple miscarriages in the process of creating their families...and here we were, with our third baby's heartbeat dancing on the screen. Incredible.
At 15 weeks, our friend Jan did a sonogram for us. Our baby was floating around in a fluid-filled world, happy as a clam. It was so much fun to watch our child dance and play.
My pregnancies with Connor and Kylee had been basically unremarkable. There was concern at some points that Connor might have been a bit small, which meant extra sonograms and non-stress tests throughout my pregnancy, but in the end, he was born just the right size. Other than that, both of our pregnancies were without incident and resulted in healthy, screaming babies in the delivery room. I reflect on hearing their first cries often, and grieve for this moment with our second son...I have to prepare myself for the fact that most likely, this great moment of the birth experience won't happen this time around.
Brandon and I were thrilled to be expecting. Since we have a son and a daughter, we really didn't care what the gender of this baby was. On March 31st, we went for our 20 week sonogram in anticipation of finding out who this little one was. We brought both the kids with us into the sonogram room. The sonographer put the transducer on my stomach and the first thing out of her mouth was "have you noticed that you're leaking any fluid?" I said "no". She kept going, and then said..."You have no fluid in here. They are probably going to have to do something really drastic." She stopped the scan. I was crying. The kids were just standing there, wondering what was happening. Brandon came over to me and held me. As he reached out to me, I saw the sonographer typing "limited scan due to no fluid" on the sonogram report. I fell apart.
We were whisked into our midwife's office. She explained to us that this was NOT good news. She did a physical exam and determined that my membranes hadn't ruptured. She said we needed to be evaluated by a perinatologist, and the fastest way to get this done was to admit me to the hospital. So off we went. I stayed overnight, and we had our first Level II sonogram the following morning. The good news was that the baby had both kidneys. The bad news is that we had NO measurable pockets of fluid. Not even one. We were told that most families in this situation choose to terminate the pregnancy.
They sent me home on bedrest. We went back a week later. Still no fluid. In the meantime, the bloodtest that I had drawn to detect chromosomal abnormalities came back positive for Trisomy 18 (a form of chromosomal abnormality that is believed to be incompatible with life). We elected to do a Chorionic Villus Sampling procedure to confirm the results of the blood test. Brandon held my hand as they poked the huge needle into my abdomen to get a sampling of our baby's placenta. We would wait 48 hours for the preliminary results. At this point, our medical advisors believed this is definitely what we were dealing with....a Trisomy 18 baby. We prepared ourselves.
The phone call came, and our baby's chromosomes were determined to be normal. Our medical providers were, in a word, stunned. We also found out in this same phone call that this little troublemaker is a boy, which is what Brandon had believed all along. We were ecstatic to find out we were having a son...we thought it would be special for Kylee, our middle child, to be the resident girl of the bunch. We knew Connor would love playing with a little brother. However, our excitement about this news was tempered by the grim reality of our situation. No matter what the cause, if there is no fluid, there can be no lung development. They had no great answers for us about the cause of the oligohydramnios.
We went in for one last Level II sonogram the next week. Still no fluid. Our perinatologist asked us if we wanted to terminate or continue on. She said that she didn't believe that it was worth doing any further sonography, because she has never, in her 22 years of practice, seen fluid reaccumulate at this stage of the pregnancy. In her opinion, our child is doomed.
I think that deep down, we both knew what our choice would be, but we left the office and talked about it. We decided to continue on. The road has been rough.
As you probably know from reading, we are Christians. We believe that our faith, above all else, should drive our decision-making. So it did, and we are continuing on. We are surrounded by an amazing church family and so many wonderful friends who are praying us through this. Our families have been a great support, too. The offers of prayers and help have come from so many...and we especially thank those of you who don't even know us for your prayers.
Don't get me wrong...there are moments when I am so angry at God I can't even speak. I have learned, through other experiences with loss, that we may never understand why this is happening to us....so we pray for strength to just make it through. So far, so good. I do have a little bit of hope that sustains me. I know that God has a perfect plan for this little one, and while I hope that he defies the odds and gets to stay with us, I also know that might not be what God has designed him for. And while I won't like it, I will surrender him to Jesus and know that he will be far more happy and healthy in heaven than we could ever hope to be here on earth.
I had a tough moment in the car yesterday when I realized that I may never get to have a birthday party for this baby boy. The tears started flowing instantly and that awful tightening in my chest began. I know that there will be many points at which things like that jump out and grab me, but in a way, I am glad to know that my grieving process has already begun...it is a necessary evil that we will face in the months to come, and with your prayers and support, I know that we will get through it.
I found out I was pregnant on December 10th. The first trimester of my pregnancy was appropriately miserable...I was tired, a little nauseous, and had many of the typical woes of early pregnancy. We visualized our son's heartbeat on sonogram on January 16th and it was a beautiful moment. I was overwhelmed by God's goodness, granting us three children...I know that so many women have to face multiple miscarriages in the process of creating their families...and here we were, with our third baby's heartbeat dancing on the screen. Incredible.
At 15 weeks, our friend Jan did a sonogram for us. Our baby was floating around in a fluid-filled world, happy as a clam. It was so much fun to watch our child dance and play.
My pregnancies with Connor and Kylee had been basically unremarkable. There was concern at some points that Connor might have been a bit small, which meant extra sonograms and non-stress tests throughout my pregnancy, but in the end, he was born just the right size. Other than that, both of our pregnancies were without incident and resulted in healthy, screaming babies in the delivery room. I reflect on hearing their first cries often, and grieve for this moment with our second son...I have to prepare myself for the fact that most likely, this great moment of the birth experience won't happen this time around.
Brandon and I were thrilled to be expecting. Since we have a son and a daughter, we really didn't care what the gender of this baby was. On March 31st, we went for our 20 week sonogram in anticipation of finding out who this little one was. We brought both the kids with us into the sonogram room. The sonographer put the transducer on my stomach and the first thing out of her mouth was "have you noticed that you're leaking any fluid?" I said "no". She kept going, and then said..."You have no fluid in here. They are probably going to have to do something really drastic." She stopped the scan. I was crying. The kids were just standing there, wondering what was happening. Brandon came over to me and held me. As he reached out to me, I saw the sonographer typing "limited scan due to no fluid" on the sonogram report. I fell apart.
We were whisked into our midwife's office. She explained to us that this was NOT good news. She did a physical exam and determined that my membranes hadn't ruptured. She said we needed to be evaluated by a perinatologist, and the fastest way to get this done was to admit me to the hospital. So off we went. I stayed overnight, and we had our first Level II sonogram the following morning. The good news was that the baby had both kidneys. The bad news is that we had NO measurable pockets of fluid. Not even one. We were told that most families in this situation choose to terminate the pregnancy.
They sent me home on bedrest. We went back a week later. Still no fluid. In the meantime, the bloodtest that I had drawn to detect chromosomal abnormalities came back positive for Trisomy 18 (a form of chromosomal abnormality that is believed to be incompatible with life). We elected to do a Chorionic Villus Sampling procedure to confirm the results of the blood test. Brandon held my hand as they poked the huge needle into my abdomen to get a sampling of our baby's placenta. We would wait 48 hours for the preliminary results. At this point, our medical advisors believed this is definitely what we were dealing with....a Trisomy 18 baby. We prepared ourselves.
The phone call came, and our baby's chromosomes were determined to be normal. Our medical providers were, in a word, stunned. We also found out in this same phone call that this little troublemaker is a boy, which is what Brandon had believed all along. We were ecstatic to find out we were having a son...we thought it would be special for Kylee, our middle child, to be the resident girl of the bunch. We knew Connor would love playing with a little brother. However, our excitement about this news was tempered by the grim reality of our situation. No matter what the cause, if there is no fluid, there can be no lung development. They had no great answers for us about the cause of the oligohydramnios.
We went in for one last Level II sonogram the next week. Still no fluid. Our perinatologist asked us if we wanted to terminate or continue on. She said that she didn't believe that it was worth doing any further sonography, because she has never, in her 22 years of practice, seen fluid reaccumulate at this stage of the pregnancy. In her opinion, our child is doomed.
I think that deep down, we both knew what our choice would be, but we left the office and talked about it. We decided to continue on. The road has been rough.
As you probably know from reading, we are Christians. We believe that our faith, above all else, should drive our decision-making. So it did, and we are continuing on. We are surrounded by an amazing church family and so many wonderful friends who are praying us through this. Our families have been a great support, too. The offers of prayers and help have come from so many...and we especially thank those of you who don't even know us for your prayers.
Don't get me wrong...there are moments when I am so angry at God I can't even speak. I have learned, through other experiences with loss, that we may never understand why this is happening to us....so we pray for strength to just make it through. So far, so good. I do have a little bit of hope that sustains me. I know that God has a perfect plan for this little one, and while I hope that he defies the odds and gets to stay with us, I also know that might not be what God has designed him for. And while I won't like it, I will surrender him to Jesus and know that he will be far more happy and healthy in heaven than we could ever hope to be here on earth.
I had a tough moment in the car yesterday when I realized that I may never get to have a birthday party for this baby boy. The tears started flowing instantly and that awful tightening in my chest began. I know that there will be many points at which things like that jump out and grab me, but in a way, I am glad to know that my grieving process has already begun...it is a necessary evil that we will face in the months to come, and with your prayers and support, I know that we will get through it.
"My peace I give to you. I do not give to you as the world gives. Do not let your hearts be troubled, and do not let them be afraid." John 14: 27
Monday, May 05, 2008
A Spoonful of Sugar...
Helps the medicine go down.
It certainly did today. Thank you so much for all of your prayers. Our appointment with the neonatologist went very well. Dr. Hall is a very kind, calm, trustworthy man. While the outlook hasn't changed, I feel as though he is very supportive of the choices we have made...and will take an honest and thorough look at our baby at delivery and then help guide us in the direction that we need to go. He emphasized several times throughout our meeting that although our son's life will be shorter than we'd ever want it to be, that doesn't mean that it isn't meaningful. He said that he and his staff will do everything they can to help make this as meaningful an experience as it can be for us...which we are truly grateful for.
He reassured us that our baby will look relatively normal...he said that babies that are in utero without fluid often appear to have been "shrink wrapped"...and while our little dude will probably stay curled up in the fetal position, as he has been in the womb, his face and limbs will not be scary to look at. His facial features will probably be a bit flattened, but this we can handle. This is a huge relief as some folks have told us that our baby will look very malformed.
He anticipates that, if things are as they appear to be on the sonograms, our son will live for no longer than a few hours. He did say that he will most likely be born alive. He also said that our baby will not experience any kind of pain while he is alive, and will just gradually stop breathing and go to heaven peacefully. Dr. Hall said that they will evaluate him when he is born, and if they determine that he, in fact, has no lung tissue, they will wrap him in a warm blanket and let us hold him and try to make the most of the short time he'll be with us on this earth. If they determine that there's enough lung tissue to make a "go" of it, he'll most likely be transported to Children's Mercy immediately. We haven't given up hope that maybe, God will grant us this miracle...but if not, we will make the most of the time we are given.
We are looking at late June for our delivery. This will put us around 32 weeks...long enough to be well past the point of viability, but early enough that hopefully some of our sanity will be left. Keep praying.
I hope this Doctor trains many medical students. His bedside manner (or chair-side manner in our case) is legendary. What a gift.
Tomorrow I may try to write and share a bit more of our story with you...I know that several of you are reading this and may not know how this all got started...and we want to invite you in to stay for awhile if you'd like. :)
Until then...
It certainly did today. Thank you so much for all of your prayers. Our appointment with the neonatologist went very well. Dr. Hall is a very kind, calm, trustworthy man. While the outlook hasn't changed, I feel as though he is very supportive of the choices we have made...and will take an honest and thorough look at our baby at delivery and then help guide us in the direction that we need to go. He emphasized several times throughout our meeting that although our son's life will be shorter than we'd ever want it to be, that doesn't mean that it isn't meaningful. He said that he and his staff will do everything they can to help make this as meaningful an experience as it can be for us...which we are truly grateful for.
He reassured us that our baby will look relatively normal...he said that babies that are in utero without fluid often appear to have been "shrink wrapped"...and while our little dude will probably stay curled up in the fetal position, as he has been in the womb, his face and limbs will not be scary to look at. His facial features will probably be a bit flattened, but this we can handle. This is a huge relief as some folks have told us that our baby will look very malformed.
He anticipates that, if things are as they appear to be on the sonograms, our son will live for no longer than a few hours. He did say that he will most likely be born alive. He also said that our baby will not experience any kind of pain while he is alive, and will just gradually stop breathing and go to heaven peacefully. Dr. Hall said that they will evaluate him when he is born, and if they determine that he, in fact, has no lung tissue, they will wrap him in a warm blanket and let us hold him and try to make the most of the short time he'll be with us on this earth. If they determine that there's enough lung tissue to make a "go" of it, he'll most likely be transported to Children's Mercy immediately. We haven't given up hope that maybe, God will grant us this miracle...but if not, we will make the most of the time we are given.
We are looking at late June for our delivery. This will put us around 32 weeks...long enough to be well past the point of viability, but early enough that hopefully some of our sanity will be left. Keep praying.
I hope this Doctor trains many medical students. His bedside manner (or chair-side manner in our case) is legendary. What a gift.
Tomorrow I may try to write and share a bit more of our story with you...I know that several of you are reading this and may not know how this all got started...and we want to invite you in to stay for awhile if you'd like. :)
Until then...
Sunday, May 04, 2008
The Journey Continues...
Hello!
A trusted friend and colleague of mine suggested that I journal throughout this experience as a way to deal with the roller coaster of emotions that I feel on a daily basis....while I am too lazy to maintain a formal journal, I do agree with her that writing might be a good way for me to process things....so I will share how we are doing here, with so many of you who have been praying for us and for our son...
I asked Brandon in the car last night..."If someone else were where we were one month ago, what would your advice to them be?" He said "Ask LOTS of questions. Don't feel too afraid to ask ANYTHING. Doctors don't know everything and this is YOUR child." I agree. I said that I would also add to that "Be prepared to be looked at like you are COMPLETELY insane by every medical professional that you encounter."
I think that has been the most difficult part of this process for me. I am a member of the medical profession, and it is the members of my own profession that look at me as through I've sprouted an extra head when we say that we're choosing to continue on with this pregnancy. They tell me that they are "100% sure" that our son will not be able to survive outside my womb....as if that somehow means that his life is less precious than that of someone who is currently living on this earth....and as if we can be 100% certain about anything that deals with the human body. Yet at the same time, I know the medical truths...a baby who has no fluid around him is not going to have the "lung power" that he needs to breathe. It is a very difficult reconciliation to make....putting ourselves through these long months of waiting....only to tell our son good-bye....and yet, there is a part of both of us, praying for a miracle for this precious baby boy.
Many parents in our same position say that the time with their children, be it 2 minutes or 20 hours, is the most precious of their lives. We can't get ourselves there yet. The thought of laboring for hours only to leave the hospital with empty arms is, at this time, too much for me to bear. I spend a great deal of time thinking about the day that our son is born and how it will feel to look at him...and while I know God will give us everything we need in that moment, the pain is so sharp I can hardly breathe. I pray that in the coming weeks, God will prepare us in a way that we never wanted to be prepared...if that makes any sense.
We met with my obstetrician last week. I will have to see her once a month...mostly to monitor my health. They have said that they see no need to do any further sonograms or check the fetal heart rate at my appointments. I was mad when they said this...again, feeling like somehow our baby's life is completely insignficiant...but in my heart, I know the opposite to be true. So, I dust myself off, cry for about a day, and then move forward. Unfortunately, it is a routine we've come to know all too well in the past few weeks.
Tomorrow, we will meet with the neonatologist that will attend our delivery. Please say a prayer for us as I know this will be a difficult appointment, too. Doctors have said that babies that are delivered after 28 weeks are usually born alive, and that for this reason, we need to have a plan in place for what kind of interventions, if any, we want for our baby after he is born. Again, medical professionals look at us like we're crazy when we have said that we want him evaluated just to make SURE that there's nothing that can be done for him. So please pray that this neonatologist isn't just another person that will think we're nuts.
Later this week, we will meet with Patti Lewis at Alexandra's House, a perinatal hospice. I have spoken with her on the phone and think that she will be a wonderful resource for us. She has connected me with another Mom in the Kansas City area that lost a baby a year ago, and she and I have talked often, which has been good for me. As wonderful a resource as Alexandra's House will be, it is also dreadful to go to a HOSPICE for babies. Another moment when the nightmarish reality of our situation will set in.
Okay, so the positives...one of my colleagues and a very dear friend, Jan, has been doing sonograms for us on occasion. Not for anything at all medical, but just so we can watch our baby play. It is incredible. He kicks up a storm and has a profile that looks almost identical to Connor and Kylee's. He is growing at a relatively normal rate and has a strong heart rate. He likes to keep his hands up by his face. I feel him moving several times a day....what a miracle. I am now 24 weeks pregnant.
Connor and Kylee are doing well. I am sometimes overwhelmed with sheer emotion just from looking at them. They are so perfect and beautiful...and so loving and accepting of me even on the roughest of days. They, along with the prayers of others, are the life forces that keep me putting one foot in front of the other.
We thank you so much for all of your love and prayers. I ran across this quote today that I wanted to share with you: "Truly there is no hand so small that it cannot leave an imprint on the world".
Our son has already made an imprint on our lives and hearts, and we ask that you would continue to pray for him, and for us, as we move forward from here.
A trusted friend and colleague of mine suggested that I journal throughout this experience as a way to deal with the roller coaster of emotions that I feel on a daily basis....while I am too lazy to maintain a formal journal, I do agree with her that writing might be a good way for me to process things....so I will share how we are doing here, with so many of you who have been praying for us and for our son...
I asked Brandon in the car last night..."If someone else were where we were one month ago, what would your advice to them be?" He said "Ask LOTS of questions. Don't feel too afraid to ask ANYTHING. Doctors don't know everything and this is YOUR child." I agree. I said that I would also add to that "Be prepared to be looked at like you are COMPLETELY insane by every medical professional that you encounter."
I think that has been the most difficult part of this process for me. I am a member of the medical profession, and it is the members of my own profession that look at me as through I've sprouted an extra head when we say that we're choosing to continue on with this pregnancy. They tell me that they are "100% sure" that our son will not be able to survive outside my womb....as if that somehow means that his life is less precious than that of someone who is currently living on this earth....and as if we can be 100% certain about anything that deals with the human body. Yet at the same time, I know the medical truths...a baby who has no fluid around him is not going to have the "lung power" that he needs to breathe. It is a very difficult reconciliation to make....putting ourselves through these long months of waiting....only to tell our son good-bye....and yet, there is a part of both of us, praying for a miracle for this precious baby boy.
Many parents in our same position say that the time with their children, be it 2 minutes or 20 hours, is the most precious of their lives. We can't get ourselves there yet. The thought of laboring for hours only to leave the hospital with empty arms is, at this time, too much for me to bear. I spend a great deal of time thinking about the day that our son is born and how it will feel to look at him...and while I know God will give us everything we need in that moment, the pain is so sharp I can hardly breathe. I pray that in the coming weeks, God will prepare us in a way that we never wanted to be prepared...if that makes any sense.
We met with my obstetrician last week. I will have to see her once a month...mostly to monitor my health. They have said that they see no need to do any further sonograms or check the fetal heart rate at my appointments. I was mad when they said this...again, feeling like somehow our baby's life is completely insignficiant...but in my heart, I know the opposite to be true. So, I dust myself off, cry for about a day, and then move forward. Unfortunately, it is a routine we've come to know all too well in the past few weeks.
Tomorrow, we will meet with the neonatologist that will attend our delivery. Please say a prayer for us as I know this will be a difficult appointment, too. Doctors have said that babies that are delivered after 28 weeks are usually born alive, and that for this reason, we need to have a plan in place for what kind of interventions, if any, we want for our baby after he is born. Again, medical professionals look at us like we're crazy when we have said that we want him evaluated just to make SURE that there's nothing that can be done for him. So please pray that this neonatologist isn't just another person that will think we're nuts.
Later this week, we will meet with Patti Lewis at Alexandra's House, a perinatal hospice. I have spoken with her on the phone and think that she will be a wonderful resource for us. She has connected me with another Mom in the Kansas City area that lost a baby a year ago, and she and I have talked often, which has been good for me. As wonderful a resource as Alexandra's House will be, it is also dreadful to go to a HOSPICE for babies. Another moment when the nightmarish reality of our situation will set in.
Okay, so the positives...one of my colleagues and a very dear friend, Jan, has been doing sonograms for us on occasion. Not for anything at all medical, but just so we can watch our baby play. It is incredible. He kicks up a storm and has a profile that looks almost identical to Connor and Kylee's. He is growing at a relatively normal rate and has a strong heart rate. He likes to keep his hands up by his face. I feel him moving several times a day....what a miracle. I am now 24 weeks pregnant.
Connor and Kylee are doing well. I am sometimes overwhelmed with sheer emotion just from looking at them. They are so perfect and beautiful...and so loving and accepting of me even on the roughest of days. They, along with the prayers of others, are the life forces that keep me putting one foot in front of the other.
We thank you so much for all of your love and prayers. I ran across this quote today that I wanted to share with you: "Truly there is no hand so small that it cannot leave an imprint on the world".
Our son has already made an imprint on our lives and hearts, and we ask that you would continue to pray for him, and for us, as we move forward from here.
Sunday, April 20, 2008
Tough Stuff
As many of you know, we have had a rough few weeks. On March 30th, we went in for our routine sonogram, only to find out that there is no fluid around our baby (called oligohydramnios). This was cause for great alarm because without fluid, our baby's lungs cannot develop properly, and without lungs, our baby will not be able to survive outside the womb.
I was immediately hospitalized, and since my release (I only had to stay one night, so it wasn't anything too dramatic), we have been back and forth to a local perinatologist who has been tracking our progress. We had our final "check" last week....I was 22 weeks pregnant....and were told that there was nothing that they could do....there is still no fluid. They have done genetic testing, viral testing....all with no answers as to why my body isn't producing the fluid the baby needs.
We did find out that our baby is a boy. He has a strong heartbeat and is moving each and every day. It is for this reason that we have chosen to continue our pregnancy, despite being told that typically, patients in our situation choose to terminate. We have decided that we don't want to make that decision for our baby....we believe God has created Him and will call Him back home in His perfect time (although, please make no mistake, we respect and understand why another family in the same situation would choose the other route). We understand this means several more weeks of waiting, only to have a very sick baby who may not even survive delivery, but we feel this is the right decision for us.
Typically, women with this condition will go into preterm labor, and then deliver a stillborn or a baby who only lives for a short while due to lack of lung development (Bronchopulmonary Dysplasia). So, we will be waiting and praying...I am no longer on bedrest, so we are trying to get back into our regular schedule as much as possible, for our sanity's sake, as well as the sake of Connor and Kylee.
We thank everyone for their thoughts and prayers. It is your prayers that have kept us afloat during this incredibly stressful time of uncertainty....we ask for your continued prayers; for wisdom, strength, and grace to accept whatever lies ahead for us and for our youngest son.
I was immediately hospitalized, and since my release (I only had to stay one night, so it wasn't anything too dramatic), we have been back and forth to a local perinatologist who has been tracking our progress. We had our final "check" last week....I was 22 weeks pregnant....and were told that there was nothing that they could do....there is still no fluid. They have done genetic testing, viral testing....all with no answers as to why my body isn't producing the fluid the baby needs.
We did find out that our baby is a boy. He has a strong heartbeat and is moving each and every day. It is for this reason that we have chosen to continue our pregnancy, despite being told that typically, patients in our situation choose to terminate. We have decided that we don't want to make that decision for our baby....we believe God has created Him and will call Him back home in His perfect time (although, please make no mistake, we respect and understand why another family in the same situation would choose the other route). We understand this means several more weeks of waiting, only to have a very sick baby who may not even survive delivery, but we feel this is the right decision for us.
Typically, women with this condition will go into preterm labor, and then deliver a stillborn or a baby who only lives for a short while due to lack of lung development (Bronchopulmonary Dysplasia). So, we will be waiting and praying...I am no longer on bedrest, so we are trying to get back into our regular schedule as much as possible, for our sanity's sake, as well as the sake of Connor and Kylee.
We thank everyone for their thoughts and prayers. It is your prayers that have kept us afloat during this incredibly stressful time of uncertainty....we ask for your continued prayers; for wisdom, strength, and grace to accept whatever lies ahead for us and for our youngest son.
Friday, March 28, 2008
Easter Update






Hello! We have had a great couple weeks...still holding out hope that someday, spring will decide to show up. :) Above are some pics of various Easter celebrations that we got to take part on it. Connor had an Easter Egg Hunt at school on a BEAUTIFUL Wednesday morning. The Easter Bunny visited our house, and the kids hurried in the cold Sunday weather to find all their goodies (Connor FINALLY got his roller skates!). We also had a visit from the Easter Bunny at Grandpa and Grandma Lori's house, where thankfully, it was a bit warmer...with enough candy for 10 or 12 kiddos!! Brandon and I are still enjoying the remnants of that celebration...
Lots has been happening in our house...
After a great deal of discussion and deliberation, I decided to resign my position with the MinuteClinic. I hadn't really even gotten started on my own there yet...but felt that this was a case of the right opportunity at the wrong time. In between balancing my responsibilities here at home, at William Jewell, and with my Grandpa, there just isn't room for another job right now. It was a tough realization for someone who prides herself on keeping all the balls in the air, but also a powerful lesson in prioritization...and let me tell you that my family will win out every time. There will be plenty of Nurse Practitioner opportunities on down the road...when family is healthy and kids are a bit older...I am realizing how quickly time with my children at home is going to pass by.
Speaking of Grandpa, things have been a bit hectic. I attended a family meeting with therapists and the case manager at The Sweet Life, and they are going to continue working with him for the time being. The primary frustration tends to be the fact that his progress isn't consistent...while he will have really GOOD days, he also has really BAD days...which can, at times, make it difficult to justify continuing to work with him, because in order for Medicare to continue to pay, continued, consistent, progress must be documented (I am learning a lot about Medicare!). The kids and I are going down to visit twice a week and then we go as a family on Sundays for a few hours. We so greatly appreciate all of your prayers for him and ask that you'd keep them coming!
And, speaking of time at home with my children passing quickly, we attended kindergarten round-up with Connor last night. Oh, boy. He will be an Alexander Doniphan "Dolphin" as of next fall. They showed a video of "A Typical Day in Kindergarten" with this beautiful song playing in the background and that was all she wrote for this Momma. I was relieved that when the lights came back up, I wasn't the only one with a tear-stained face. We were impressed with the school, got to meet all the kindergarten teachers (we'll find out which teacher Connor will have later in the summer), and liked the Principal, too. Connor spent some time in one of the classrooms and did well. He still isn't entirely sure about this whole kindergarten thing, but it was a good introduction. I can hardly believe that we are at this point in our lives. I feel so blessed to have enjoyed the last 6 years with him at home, and know that this will be a great experience for him, too.
Kylee is doing well and growing leaps and bounds almost daily, it seems. We are currently engaged in the potty wars (why I call it a war, I don't know, since we ALL know that the parents won't win!). We continue to admire her confidence and decisiveness...she's finally big enough to keep up with the other neighborhood kids, so it's fun to watch her run and explore with them.
In Baby #3 news, I am almost 20 weeks along and doing well. We have our sonogram on Monday afternoon and have decided to find out the sex of the baby (all of you who know us well are not a big surprised by our decision...we know, we know...it was fun to imagine being spontaneous people for at least a few months). ;) The kids are coming with us and are excited to know if there's a brother or a sister in Mommy's tummy, and Mommy and Daddy are anxious to see if this little one is healthy (and honestly, excited about answering the gender question, too). :)
Thanks for reading!
Wednesday, March 12, 2008
As Promised...
I mentioned in my earlier post that we've started a bit of a tradition with taking the kids to Build-A-Bear Workshop as their Valentine's gift. Here our some pics from our excursion last month...
This is a shot of the kids sorting through the bins of animals (Brandon thinks it's hilarious to call them carcasses) to pick out which one they wanted to stuff and fluff. Ironically, neither the turtle or the pink bear made it to the final round. :)
Connor selected "Sleepy Bear"...here he is getting his new friend stuffed.

Miss J's turn. She picked out a cute little brown bunny. I'd like to point out that we do, in fact, brush her hair on a regular basis...contrary to the way it appears in most of these pictures.

Everyone is all boxed up and ready to go home. :)
Monday, March 03, 2008
Happy Heart Day!
Sooo, let's back track a bit and cover Valentine's Day.
We have started a little family tradition of taking the kids to the Build-A-Bear workshop as our Valentine's gift to them, and as soon as I unearth the pictures of that, I will post them. I also must give my husband props for the beautiful roses that were scattered around the house for me on Heart Day. Kylee and I also got to attend Connor's school Valentine's Party as part of our holiday celebration, and I do have the pictures from that event, so here goes...
Kylee even got in on some of the party action:
The kids ate some yummy donuts and played a few games at their party. Here's a picture of Connor showing how disappointed he is in the snack selection...ha, ha:

Of course, what would Valentine's be without your sweetheart? Connor and Paige are quite an item in their classroom, as you may remember from previous posts. I can't decide if I'm grateful or disappointed that they won't be going to the same gradeschool next year. :)

We hope this finds you all doing well and staying warm. IS IT SPRING YET?!?!?!?
We have started a little family tradition of taking the kids to the Build-A-Bear workshop as our Valentine's gift to them, and as soon as I unearth the pictures of that, I will post them. I also must give my husband props for the beautiful roses that were scattered around the house for me on Heart Day. Kylee and I also got to attend Connor's school Valentine's Party as part of our holiday celebration, and I do have the pictures from that event, so here goes...
Kylee even got in on some of the party action:
The kids ate some yummy donuts and played a few games at their party. Here's a picture of Connor showing how disappointed he is in the snack selection...ha, ha:
Here's Connor's friend, Jobey, beside him at snacktime:

Of course, what would Valentine's be without your sweetheart? Connor and Paige are quite an item in their classroom, as you may remember from previous posts. I can't decide if I'm grateful or disappointed that they won't be going to the same gradeschool next year. :)

We hope this finds you all doing well and staying warm. IS IT SPRING YET?!?!?!?
Friday, February 15, 2008
Big News for The Carlson Crew

Good Morning! Look closely at these pictures, and you will see that Kylee's shirt states that she's going to be a BIG SISTER!
That's right, folks, we are excited to announce that Baby Carlson #3 is on the way...due August 17th. I am 13 weeks along and doing well. I have battled the typical first-trimester stuff, which has added an interesting dimension to a busy work schedule and trying to navigate all of this with Grandpa, but I am now at the point where I am having more good days than bad days, which is great.
We had deliberated for months about having a third child...me being more comfortable with the idea than Brandon. I think that a large part of my desire to have a third comes from my frame of reference...coming from a family of three kiddos myself. My sister, the middle child in our family, assures me that the only reason I think having three kids is cool is because I was the oldest of my brood. :)
We thought, prayed, discussed, discussed some more, and this summer, both came to the conclusion (independently, actually), that we were brave enough to be outnumbered. :)
We feel amazingly blessed. I had a sonogram last week and it was incredible to see a perfectly formed little person floating around inside my belly. Following the sonogram, we told the kids what was about to happen. Both seemed fairly okay with the idea, which was a relief. I think Kylee was way more excited about her new shirt. Connor said he was "too nervous" to have his picture taken in his big brother shirt, so that's why there are no pictures of him in this post.
The question many folks have asked us as we've shared our news is "Are you going to find out what you're having?". Our answer, right now, is "no". But, who knows? When we're sitting there right next to the sonogram screen in a couple months, our resistance to finding out may dwindle (I, in general, don't like surprises, so this will be interesting). However, given that we really have no preference either way, it makes sense to spice it up a bit this way.
Let the adventure begin.
Monday, February 04, 2008
Prayers, Please...
Let me begin this post by telling you what an important part of our family my Grandpa is. Following my mother's death in 1999, he did everything he could to help us navigate life without Mom...financially, emotionally...all of it. He has taken care of all of us in so many ways both before and following her passing. His care for us has greatly surpassed the typical role of Grandpa as he has looked out for Sarah, Jordan, myself, and our families. Here he is with Connor preparing the Thanksgiving bird for the oven...his traditional role at our holiday gatherings.As many of you know, Grandpa had two strokes following a heart catheterization procedure in January.
The last month has been extremely stressful as we've tried to make decisions about Grandpa's care while dealing with the uncertainties that stroke brings. Weighing heavily on our hearts is knowing what a proud and dignified man my Grandpa is and how QUALITY of life is much more important to him than quantity.
I have oscillated between anger, sadness, helplessness, peacefulness, anxiety, and frustration, which I suppose is normal.
In my lowest moments, I wonder why God has brought this experience to us. Doesn't He know that our numbers in this family are dwindling after the loss of both Mom and Grandma? Does He know that Grandpa would NEVER want to be dependent on others for walking, bathing, eating, and simply using the restroom? Is He aware how much Grandpa means to us?
Of course He is. Logically, I know this. Emotionally, I struggle. We spent Thanksgiving and Christmas together, and now, just a mere month and a half later, this?!?!?! It's a tough one to wrap your mind around.
My Uncle lives in Great Bend and is able to oversee the day-to-day aspects of Grandpa's progress in the hospital. Craig and I are the powers of attorney for Grandpa, which, quite frankly, is more responsibility than I want to face right now, but because Mom isn't here, it's how it has to be. I am thankful for the support of so many friends and family who have been more than willing to help in any way that they can. I am especially thankful for my husband, who, as always, has been there for me every step of the way.
Grandpa is currently on a rehabilitation unit at a hospital in Great Bend. In two weeks, they will transfer him off the rehab unit and are currently saying that he will need the kind of care that can only be provided in a nursing home. Ouch. In order to be moved anywhere else, he will need to make MIRACULOUS progress in the next 14 days. While his improvement is gradual, care providers are concerned that it isn't consistent enough...that he will need much more help than an in-home provider or an assisted living facility can provide. His ability to reason and problem-solve is signficantly impaired, which will make it impossible for him to be independent at this stage of the game.
It is for this miraculous progress that I am praying for, and I ask you to do the same if you think of it.
I would really like to have Grandpa with us preparing the bird for Thanksgiving 2008.
Also, I would invite you to tell a family member, TODAY, how much you love them. Because you just never know.
Thanks.
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